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Jan 20, 2015 11 years ago
reborn
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maniae

i am wanting to commission a number of iih/ptc/rare disease day items..

explanation: basically i have a rare disease called ptc (pseudotumor cerebri) / iih (ideopathic intracranial hypertension) that causes intense head pain. i got a vp shunt placed in my brain on 2/5/14 which saved what was left of my eyesight and managed to dramatically reduce the swelling of my optic nerves due to a build up of cerebrospinal fluid in my brain. as you can see, my anniversary is coming up, and i am wanting to both celebrate that anniversary and work to spread the knowledge of both my disease and other rare diseases (rare disease day is feb 28, 2015)

i am eventually going to want a whole line of items. references and inspirational material here

i will pay csc or usd.. just if you could please quote me on a price, that would be fabulous :)

thank you for the interest thus far!

is willing to work with me on the ribbons :) of equal importance- a ribbon that would go in the top left corner of the HA box. i would want infinite recolors (for cancers, etc) this will be a ribbon people can wear on their avatar with pride. showing support for friends, family, themselves- just like real life yo.

is willing to work with me on everything else! :) first i am looking to get the dress makeup, necklace, hair pin, or hair

[edit]1/30/15: the ribbons in the corner were rejected. ping me with other ideas! so far, ive heard ribbon tattoos, ribbon necklaces, and scarves in the ribbon colors. :D i think these are worth exploring and trying. if anyone can think of anything else- ping me! i was really disappointed for a bit there. but i still have this gorgeous line of items. so. :)

the rejection details. please read.

[edit] 2/10/15: finished the entire line for iih/ptc!! i have a board, here where i am selling everything!

Jan 20, 2015 11 years ago
SexyFart
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Deathly Fart

This is awesomeeeee! I would love to support you in this and also see other ribbons for other disorders like bipolar disorder. GREAT Idea!!!!

Jan 21, 2015 11 years ago
Kaje
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Dung

This is very cool! I agree with Poison_Envy also, I'd love to see more ribbons! Good luck in your quest :D


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Jan 21, 2015 11 years ago
Crab
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Diet Coke

this is such a great idea ^w^ I have a rare genetic disorder called Ehlers Danlos Syndrome and for a while now I've wanted some way to help with awareness, especially as I spend so much time here, so ribbons for all sorts of conditions would be amazing!

Jan 21, 2015 11 years ago
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maniae

i will be absolutely contacting you guys once the ribbon style is finalized so we can discuss the necessary colors :D so glad for the positive feedback, and i am honored to help out with awareness :D

Jan 21, 2015 11 years ago
SexyFart
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Deathly Fart

You are a great persona nd I'm honored to call you friend. ❤

Feb 2, 2015 11 years ago
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maniae

looking for new ideas for the ribbons, since they were rejected. details of rejection

updated first post. ping me with ideas. so far, ive heard ribbon tattoos. i think that might be worth trying. wondering if anyone can think of anything else? i was really disappointed for a bit there. but i still have the gorgeous dress. so. :)

Feb 2, 2015 11 years ago
Violin
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humm they might not accept the dress then since it has the ribbon on it as well? :c

Feb 2, 2015 11 years ago
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maniae

they werent really specific about the ribbon in other applications :/ so im thinking.. for precedence.. maybe it will be ok? i am so crossing my fingers!!

Feb 3, 2015 11 years ago
Kaje
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Dung

Hmm, maybe another sort of wearable, like ?


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