So, long story short about a year ago my doctor diagnosed my vulvodynia and eczema as a result of my body producing too much histamine and prescribed an antihistamine to keep it in check.

Now, one year later I got bored and decided to see if there were any other effects of this on my body. What I found was shocking, patients with high histamine levels (histadelics) all showed similar symptoms; -rashes/ skin disorders -high metabolisms/ thin lean builds -chronic depression/ seasonal affective disorder -high rates of suicide -OCD/ anxiety -phobias -low pain tolerances -overproduction of saliva, tears, etc -joint and muscle pain -competitive/ driven -takes on too many responsibilities

So, I just so happen to have all of these things. Especially the psychological symptoms of anxiety, ocd, phobia, depression, suicidal ideation, etc.

But I'm left with two major problems;

1. All this information is coming from less than credible websites and there are no (to my knowledge) peer reviewed scientific studies on this or on how to treat this.
2. If I did want to treat this (just antihistamines don't really treat it effectively), there is the risk of losing some of the good things that come along with it such as my metabolism/ thin build and my drive to do things.

Thoughts?

There is a lot misinformation out there, not just on the net but from many sources. On the other hand many new theories that come out are immediately lambasted by the established peers, yet prove to be correct in the long run. You have to look at things critically, and also get someone else to look at your information, someone who isn't invested in finding a 'cure' because they aren't affected.

You have to ask yourself who profits from this information? Is someone selling a cure? a book? looking for grant money? Even peer reviewed journal articles have included lies, deliberate skewing of the data to show the results they want and plagiarism, among honest mistakes and badly designed experiments. So when you say you can't find anything peer reviewed, the information has to viewed even more skeptically.

Take a close look at the 'cure' they recommend. One rule of thumb I use is how many things will it cure? 1, 5, 100? The higher number of things it cures (particularly unrelated things), the less likely I am to buy it. Do they require you to stop conventional therapy? or can you continue to use conventional therapy along side the 'cure'? If you must stop conventional therapy, how would that affect you presuming the 'cure' does not work? Does the 'cure' require other steps? i.e. must you exercise, eat a special diet, take a secondary drug? In other words are you changing many things when you start the 'cure' and how likely is it that those other things that go along with the 'cure' is/are what are causing changes in your symptoms?

Finally what exactly does the 'cure' consist of and does it have the potential to harm you. This really needs to be well verified because many things we think of as safe are really not! The advice we get to drink 8 glasses of water a day, every day, for example, can be bad and unhealthy advice. In the long term it can cause kidney and circulatory problems. The dose makes the poison - the thinking that taking something good for you, like vitamin C, means taking lots of it is also good for you is generally wrong and simplistic. So when you look at what is in the 'cure', you also need to look at how much is in it.

LOL, and here I am forgetting your original question - what would I lose? That's always something that comes with change. And, unfortunately, no one can answer it for you.

I have looked into it all. The only cute currently available is a long term taking of various vitamins and minerals. Thus nobody except drug stores really expect a profit. Other than that I don't know who would profit by lying about this. It says nothing about quitting conventional therapy or curing other things. So yeah.

I just gotta know is this a result from genes or your environment? Or is there anything that shows/ proves known causes of it? This is something I've never heard of or encountered and my dad was an army medic and my mom an LPN and I heard stories but nothing like this. And for the things that comes with it does anything help? Like for rashes using lotion/ creams? Is there anything that makes these symptoms stand out more than other illnesses that get those same things? Ack here I am asking you things instead of offering help, sorry ^^;

Um has your doctor offered more things to do look into? if not maybe talk to them about the info you have found and see if they have any ideas to help or even talk to you about your concerns of what may change should you find better things than just the antihistamines.

As for the info you are finding. Is it sites or people known for writing/ posting actual helping info or altered info? are there any notable doctors/ researchers on this?

It is genetic though environmental factors can exacerbate it significantly. It is caused by under methylation, which means your body is bad at destroying histamine which lets it build up. As far as the symptoms, you can get symptom relief, yes. As far as the skin conditions, its that you don't just have eczema, you don't just have sensitive skin, you don't just have a bunch of skin allergies, you don't just have psoriasis; you have all of them. And the vulvodynia is only explained, to my knowledge, by too much histamine. The mental illnesses, its the same kind of thing; you don't just have depression, you don't just have OCD, you don't just have a bunch of phobias; you don't just have insomnia, you don't just have suicidal ideation, you don't just have anxiety; you have them all. And I honestly don't know what else causes the super high metabolism, haven't really looked into it.

I haven't seen my doctor since summer, he doesn't focus on histadelia, nobody does. He's an OBGYN and he diagnosed my vulvodynia. It takes months to get an appointment with him and I don't think he'll be able to help more than he already has by confirming I have too much histamine.

I've found it in various places, it mostly sounds legitimate, however there have been no reliable trustworthy doctors or researchers in this. Its a field that has not yet been explored. Probably because they make more money treating the bucketloads of symptoms instead of the actual cause...