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Mar 30, 2019 7 years ago
Stitching
is a lovebug
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Be Aware

Okay, so I have Multiple Sclerosis. I've gotten to the point in my life I just don't want to take the shot I have to take every damn day. I know in my mind I need to take it. Subconsciously I don't really see a point. It doesn't stop it from progressing...it may slow the progression down but that's it. Even being on the medicine I've still developed lesions on my spine that were never there. I've developed other symptoms caused by having the MS too. I just...feel so burnt out by it. My Mother has to give me the medication because with the item I could use to give it to myself it causes a ton more pain than if administered by someone else. My mom has told me it pains her having to give it to me everyday because she knows I'm slowly dying. She hates watching me slowly deteriorate.

Any advice that anyone can give me to motivate myself to keep taking the medication everyday? I want to...consciously take it...I just...need to find a way to stop my subconscious from putting that doubt in my head.

Mar 31, 2019 7 years ago
Phantomhive
is a book worm
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Regin Eldwynn

I have this same issue when it comes to doing what I need to for my health conditions. But I just remind myself all the things I would lose if I don't do it. Have you written down some of the things you're looking forward to? Things and people that matter - That's what I do. I assign one good thing/thought /person to each task, pill, and care step.

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Apr 1, 2019 7 years ago
Rhiannon
has a bad feeling about this
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My best friend was diagnosed with MS last year. She doesn't take injections, but her medication schedule is crazy...so many pills. She's had similar feelings regarding all this hassle just to slow progression because like you mentioned, her latest MRI showed new lesions as well. If you haven't discussed this with your doctor, maybe express your concerns with them. Would the possibility of just taking a pill every day be easier to handle than the shots?

I really wish I could give you any advice at all, but this has been one area where I feel so lacking with my best friend. Just know that you are NOT alone in what you're going through. Don't give up. When you have good days, enjoy them as much as you can. Take care of yourself, for you and the people who love you. <3

Apr 1, 2019 7 years ago
Stitching
is a lovebug
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Be Aware

Sadly with the insurance I have, I'm only allowed the every day shots. I can't even go to the three day a week ones because it won't cover it. Heck, tomorrow I have my check up MRI...and I'm pretty sure I'll hear there's new lesions again. I keep looking at the meds in my fridge and I KNOW I need to take them...it just...doesn't feel like any good reason. I've told my doctor about this and she gets it, she has had patients that expressed the same issue to her. Some have gone years just not taking their meds because they feel so burnt out over an every day thing that does nothing for them.

I just wish I felt like there was a good solid motivation to take my meds. Yeah, I know I have people who love me and all, but, it's not like I'm dead. If I had a valid reason to take the medications that would give me some hope of not suffering from this stupid condition....maybe I'd actually take them everyday...

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