I'm in a lot of pain today, and I'd love to talk to others who know what I'm going through. I'd just love to have a Chronic Pain thread where we can discuss our issues and support one another. Be sure to ping me so I won't miss your comments. Hugs

Oh man, fellow spoonie here. I was totally thinking about a chat thread for chronic pain too recently. Wasn't sure if anyone would be around to want to partake.

I went to the farmer's market this morning. Used up virtually all my spoons for that. I then proceeded to shiver in a sweater for the rest of the day, until my pain made me overheat and then I sweat.

hug I am so sorry, love. I hate the chilling and overheating.

I was lucky yesterday, I was able to go to the grocery store and get my nails done. I was nervous before I left because I felt like I might not have that many spoons and didn't know which direction the day could go, but I was okay and very thankful for that.

Hey there! Fellow spoonie here too. I just stumbled back on to Subeta for the first time in a long while, and I'm glad I found this thread. Too often I find that I'm not able to talk to people about this stuff, or at least not people who understand.

I'm also very glad you were able to get groceries & your nails done! It's often scary to go for it when you're not sure whether your spoons will last, but it's always great when it turns out alright.

I'm pretty lucky with my pain/fatigue situation overall – I'm in college right now and my symptoms are managed fairly well, though I definitely have those days when getting out of bed is not an option. Yesterday, I went with some friends to a nearby forest for a couple hours, and I was feeling pretty good for most of the excursion. I took a lot of nice photos! Ran very low on spoons as we were getting back, so I just spent the rest of the evening sitting in bed and playing chill games on my computer.

Fellow spoonie! Sister has lupus, mom has porphyria, two aunts with Hashimoto's, and no clue what's wrong with me. So, that's fun. :D

My issue is constant nausea (to the point of gagging and nearly vomiting) and stomach pain. It's been going on for a couple years now. CT scans, endoscopies, fancy x-rays, blood tests...nothing. I could barely eat before I got on my medication, and I was dangerously underweight. Now, I'm actually gaining about a pound a month. :D

Last night, I played it risky. Had an acidic energy drink and an alcoholic root beer. Even with popping a Zofran and a Zantac, I still had stomach pain and felt sick. But it was worth it, and everybody knew of my stomach problems (so no one got weirded out when I started chugging water and fidgeting). I am tired of not being able to eat/drink things, and I'm tired of turning down invitations to hang out with people. I gotta indulge every couple of months or so, or it'll take a toll on my mental health.

Wow, meant to respond to this a long, long time ago! Apologies. I understand that isolating feeling. People tend to be of the mindset that if you can't see an illness it doesn't exist, and don't take chronic pain sufferers seriously, or take the time to become educated about it before they speak.

I'm so glad you're able to manage well for now though, that's fantastic!

Hey, friend! It's crazy because I know someone through facebook with those same exact symptoms. She can barely eat anything, most days just bread and a little vegan butter, the pain always wins in the end it seems. I really hope you can find the treatment you need. I am glad though that you occassionally indulge. Everyone needs those moments.

That is crazy. Is she vegan too? I might have just found my new best friend, hahaha.

She actually is! haha

That is wild! I can't help but think that it might be me, but I'm hoping it's not! Let her know that she has a twin. :D

I can tell you right away, is your real name Jill like it says on your profile?

Her name is Louise. ^^

I have CRMO, a rare disorder that acts pretty much like rheumatoid arthritis. The pain can be unbearable sometimes, though since I started taking medication for it, it's been more manageable. Not a big fan of weekly injections, though. ;_;

HI everyone, I fell off the bandwagon. Which bothers me because I really want to talk to people. (Like anyone, please.) But I start writing and I'm like 'nope no one cares' and then delete it.

SO - I got called last week by a neurologist that I had requested WELL over a year ago. My doc told me I shouldn't expect to hear from them because the guy was like not practicing anymore. He told me that at my last script refill. So I was thrown when I got the call! Had my appointment Wednesday. And... I'm just kind of disappointed. Now, way nicer than the last neuro I saw. Staff was great. And I got a new cat scan request which I haven't had one since 17 so that is superb. But, nothing else? He suggested some naturals I haven't tried which is nice but... nothing else? Nothing. I finally got someone to agree it's not JUST migraines, it's a mix, but I know there are other meds out there I haven't tried. So why not offer me another attempt? Fuck give me a shot at SOMETHING. Even if it fails to prevent or improve anything. I haven't had appropriate care in a while now and I get a chance at some and nothing. I kind of was hoping for more of an attempt at care rather than throw your hands up and 'call me when you have your scan done'.