Replies

Feb 5, 2014 12 years ago
howlite
is the wurst
User Avatar
Lightcap

So I've made posts before about how I have a diagnosis of Chronic Lyme disease and haven't been able to see a doctor since I was diagnosed in 2012, but lately I'm starting to wonder if I'm developing more issues or maybe if it's something else and I was wondering if anyone else recognizes my symptoms.

**Im gonna be talking about vomiting, IVs, and GI issues so if that skeeves you out, please steer clear! **

For the last few weeks, on end, I've been nauseous constantly and was getting terrible stomach pains. I'm not gonna lie, at first, I was managing it by smoking a ton of weed, it was the only way I could get myself to eat anything, but once I ran out it got really bad. Last week, I couldnt eat AT ALL. I managed to keep down 8oz of yogurt and that was it for the entire week. I threw up the rice I tried to eat on Wednesday, and then Thursday nothing happened but I wanted to throw up all night and just didnt.

Friday I started puking all day. It was every couple of hours and EVERY time I tried to drink water, gatorade, juice, tea, I would almost immediately puke it back up, either within a half hour to two hour window. I couldnt even think about food or my stomach would start twitching all over. I was in so much pain I couldnt sleep, and after puking for like, the 7th or 8th time I finally fell asleep around 4am. I thought I had finally managed to keep down about 1/4 cup of water, but I woke up at noon, puked three times between noon and 2, and then begged my roommate to take me to the ER.

(The reason I didnt go to the ER the night before was because my parents have threatened to cut me off of their insurance if I go to the doctor and "they dont find anything." That's a long story. I swear to god, I've only gone to urgent care for something that wound up being benign ONCE and it was two years ago so I don't know why they're doing it, don't ask.)

Anyway, wound up in the ER, they gave me an IV, they put me on Prilosec and an anti-nausea med so that I could keep fluids and food down and sent me home, & told me to follow up in a few days - they said it might be ulcers but they aren't sure, depending on how the Prilosec works they will have a better idea. (I haven't made a follow up appointment yet because I don't know what my parents will do.) But one of the things they asked me in the ER was did my back hurt, and I said yes but it was for another reason I was sure, it was just my lower back.

Not the case anymore. I know Prilosec usually takes a couple of weeks to kick in, and that one of the side effects is painful/achey joints (which is GREAT since I already have arthritis and bad joints. But whatever). I've been on the Prilosec for like three days (since Saturday) and it definitely has helped me eat, but I HATE eating still. It doesnt feel right. Hunger feels extremely painful and having food in my stomach satiates the pain, but makes me nauseous. The pain has gotten worse and IS, now, going through to my back. I'm also getting stabbing pains in my stomach and abdomen and everything is tender and sore from my ribs to my hips. Plus, my joints and hips are in excruciating pain (which I'm guessing is a side effect of the prilosec but it sucks).

I can't even roll over and lay on my side without it feeling like every organ in my torso is cramping up. It's the worst at night and when I wake up in the morning but its really starting to bother me. I know a friend who was told something similar when he was throwing up and getting stomach pains, they were like, "its probably ulcers," and it turned out to be his gallbladder. BUT, they already took ultrasounds of my gallbladder and pancreas and they said even though they don't know what it is, they know it's not those two things.

I'm pretty sure, anyway. I mean, that was the whole idea behind taking the ultrasounds in the first place so whatever.

Does this sound familiar to anyone? Im just worried about going back to the doc because if I don't have a solid idea of what it might be, a) my parents seriously will take me off of their insurance, and b) I'm moving shortly but idk exactly when. In the next few weeks for sure, by March 31, so I dont have a lot of time to be going back and forth and back and forth with doctors here while they putz around telling me that nothing is wrong, as they seem so wont to do.

But I'm also in sooo much pain (and I'm NORMALLY in a huge amount of pain so this sucks even worse) and I'm supposed to be packing, getting rid of my furniture, finding new homes for my pets, trying to get rent money since I can't pay my bills... and I can't do any of it, I can't even cook for myself, I dont even have the energy to go get some soup from the store because I'm so tired and sore I can barely walk, I've just been bedridden, basically.

I just really want to get to the bottom of this, I am so over my health declining in every which direction every single time I think maybe it'll finally be manageable.


he/him "that which does not kill you only wants to watch you suffer a while longer." · goatlings · flightrising ·

Feb 11, 2014 12 years ago
Hope
is a survivor
User Avatar

I'm so sorry your parents aren't being helpful, because this sounds really serious to me. That much pain, combined with the vomiting/etc, is not normal. Unfortunately, it takes time to diagnose things sometimes, and sometimes there are even false readings. You just have to keep looking, and hopefully, find yourself an advocate - someone credible who believes you need the help and will push you to keep going. I had a really weird, rare thing that took 5 years to diagnose (please don't worry though, this was really a fluke and should not take THIS long!) and I was lucky that I had my mom fighting for me when others were constantly trying to say nothing was physically wrong. In the end, they were very wrong, and I finally found a doctor who believed me and took me seriously, and he was the one to finally order the correct ultrasound that found the problem. But even if you don't have your parents, keep looking for a doctor who believes you, or another relative, or a friend.

I also don't know your exact situation, but is there any way you can stay with your parents for a bit so they can SEE the physical effects of how bad you feel? Sometimes that's all it takes - being forced to live with it can make someone open their eyes.

Whatever happens, I wish you the best of luck and hope you find what's causing all of this!

Please log in to reply to this topic.