I have a lot of issues that are weighing me down pretty bad right now. But the main one that's frustrating me is I have been told Psychogenic Non Epileptic Seizures.
I'm going to go ahead and say the other issues that I have because the tie back into my current situation. I'm also agoraphobic, have generalized anxiety disorder post-traumatic stress disorder as well as being bipolar II. I was in out-patient treatment when my meds where switched and I started having the seizures again. I was told I would need to go to a neurologist before I could be cleared to go back for treatment. The messed up part is they new that I have severe panic attacks being in new places and being in being in vehicles. My husband couldn't take me so it meant I had to take a taxi to the hospital. I don't have family or friends to take me and I can't take public transit because I would lose my freaking mind. So I sucked it up and a took taxi which put me on edge but I made it through. But when I made it to the office I started having a panic attack and and asked if it would be alright if I took more of my anti-anxiety meds and they said sure. But apparently that wasn't enough and I started having a seizure in the examination room. So they took me to the emergency room and monitored me until my husband was able to come get me. Things are a bit hazy here because at this point I'm on more of my meds than I have ever been on at this point but still having a seizure. A woman comes in and then tells me that I have PNES and I will be fine and they send me home saying I'm ok to go back to outpatient. I'm not sure how much space I have left for the post so I will add a second post to this if anyone is even interested
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-spork that must be extremely hard living with all that. It must have taken a lot of courage to be in that office and go to new places. My one friend has agoraphobia. When he's in a social setting like the super market he asks for me or one of his friends to call him. If he can't he kind of freezes up and can't go until another day when someone can(which probably isn't too long, he has some active friends.) It helps hearing are voices I guess. With me, I have generalized anxiety disorder. Sometimes I get so nervous that I glance around a lot very quickly. It's hard because It can make people suspicious a lot. Some even yell at me for it, even though I can't really control it. Some of my old therapists show'd me some technics of how not to do it..but none of them worked.
Thanks for the response. I have a squishy little rubber dinosaur that has plastic beads in it. Some thing about the the texture of the rubber spines and the sound of the beads squishing around helps when I'm talking to new people or taking a car trip. I have no idea if that would help you with you with your anxiety but if you feel weird trying it , I started out with it in my my hoodie or coat pocket until I just stopped caring if people saw it. :)
The rest of the story is I went back to my out patient group and had to re-apply to get back in. They knew I was still having the seizures but said I could come back. So I came back had a seizure and then they told me they couldn't help me while I was still having the seizures and booted me out again. After all this I have sort of fallen into no mans land. Basically every time I try to get help I'm getting told "Sorry, we'd love to help you but cant with the seizures. Here is someone else's phone# they can help." So I have been just calling a long line of people that give me the # of someone else to try for a few months now. :( It really sucks because when I talk on the phone I get incredibly nervous and start to stutter which makes everything that much slower and harder to explain.
Sorry for talking your ear off :P But thanks so much for listening.
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-spork that's great that you found something that can help:D It sounds pretty cool looking too^_^ It would be nice if it could help, thanks for the idea:3 I really hope you find the right place for you soon and that they can help a lot:) I'm sorry that that happens to you on the phone. Before I talk on the phone I try to plan out what to say in my head a few times. Or I write it down.
Nonsense! I like hearing other peoples stories:) Of course I wish your tale wasn't bad experiences. I do admire that your trying so hard to accomplish your goal. Keep at it!<3