Crohns disease and calcified bursitis in shoulder. My Crohns is under control, but my shoulder is very painful.
It seems dead in here, unfortunately, ! Perhaps you and I could chat anyway, try and liven it up some?
I slept all day due to an awful weather/lack of caffeine-induced migraine. I'm going to sleep again in a few minutes.
How're you, and any other readers?
I'm sorry, I know it's been almost two weeks since anyone's posted here, but I thought it would be too soon to start a new thread saying the same thing!
It's so nice to see some spoonie solidarity here ♥ I've got a litany of mental illness diagnoses haha, plus chronic pain à la suspected endometriosis (still getting checked out for it!)
I hope you're feeling better than you were, !!
Thanks, I am. I hope you figure out what's going on with you soon. Endometriosis is no joke. <3
I'm missing several discs in my spine along with mental disorders. My spoons are always over used. But I have to provide for my family.
Thank you so much, ♥
I'm so sorry you have to overwork yourself so much, - I hope you get to take some time to take care of yourself (and be taken care of, too)! Your strength for taking care of your family is inspiring ♥
It's very difficult because it's night shift. Luckily my job isn't hard but, it's really depressing. I rarely sleep due to inconsiderate people and super light sleeper, rarely see the sun. I've let myself go, but at least I have a roof over my head and bills are caught up and paid.
That's a really rough situation to be in ( •᷄⌓•᷅ ) I don't really know what to say except for that I hope, somehow, things can start to improve... That probably sounds like a hollow sentiment, I'm sorry ;;
Thanks. How are you doing today? How are you holding up?
Sorry you need us but glad you found us, you know? I'm sorry your pain is so bad and your health's rough, too. Can you find a more compatible to a 9-5 job? Or is that not in the cards? Sorry if I'm being nosy.
I'm doing okay thank you! It's the constant fatigue that's getting to me right now, no unmanageable pain (thank goodness haha). Trying to be productive and get some good tidying done! How are you today?
Nausea's bad, but I think I'm going to be okay. Otherwise I'm okay.
Oof, well I'm glad you're okay on some level at least ;o; I hope the nausea eases off, or that you can do something to help manage it ٩꒰ ´ᆺ`꒱۶
That's very sweet, thank you. I'm glad you're doing well. Just don't overdo it!
You're welcome, and thank you ! I'll be sure not to push myself too hard, hehe ♥
It's hard! I know a lot of spoonies who are just like "I feel good today, I should do everything I've missed!" And they end up floored for a week+ after. So I worry. Don't mind me, haha
Oh absolutely, I've seen that and been there myself :') Honestly I'm too tired (and perhaps unmotivated..... shh) to do enough to totally wipe myself out, if that makes sense? Maybe that's a bad way of phrasing it, hehe ꒰๑˃͈꒳˂͈๑꒱ Regardless, I'm trying to save a spoon or two in reserve ;w;
No, I get it. Absolutely. I wish you luck!
Thank you. Kind words are better than not saying anything. I hope things go well too.
9-5 isn't in the cards sadly. I have limited job experience (state tested nurses aide and security, but only 2 years). Finding a job that isn't customer service or fast food is difficult. Plus, I couldn't handle people who yell at poor cashier and food service. I'd be the one hauled out after decking someone. I don't take kindly to mean, think-they-know-it-all kind of people. I know it's mean to say that, but I honestly can't put up with that. I already have a bad mentality, don't need 'Karen' to berate me more.
Hell no, I get that. Especially if you're in enough pain to want to cry. I get it. My temper's shorter on bad days, so I definitely feel it!
Exactly! I feel like no one can understand or relate to pain or just the low energy or mental health issues. Last week, or the week before, I took a tumble at work. Where I'm missing discs in my lower spine, my legs will go numb and can't support me. I crashed to the floor and cried. I'm only 29 and fell like a 2 year old. No one helped me. I had to wait for feeling to come back.
My dad always asks for help to move heavy objects and doesn't understand why I need frequent breaks or end up hunched over. He thinks I'm playing around to get from work.
I'm glad there are some who understand, but those who are in my daily life don't relate.