I can't walk any more, due to joint problems and severe pain. I don't want to go into details, but coming on Subeta and a few other internet games is the only thing that keeps me busy and my mind off these terrible problems.

Yes! I have the spoon theory link bookmarked on my computer. Such a great analogy. I have chronic intractable migraines with and without aura and occipital neuralgia. I've had them for about seven years and most of my time I have one. I'm glad there are other people here who can understand.

It is going well so far, I am still making great strides.

I am glad that you seem to be feeling better yourself. hugs

I understand pain, but I am not sure which is worse. Emotional or physical. I am super excited over the fall season though, so I am a little manic from that. All the holiday hype.

This thread blew up o.o IT's kind of awesome :3

I have trigeminal neuralgia. It's been okay lately, but I still get the occasional flare up. I'm just waiting for it to hit me bad :/ I hate the medication I'm on for it because it gives me migraines :/

I also have mental health issues, which are... bad.

sorry I went MIA for so long I had a major infection and a number of surgeries followed this summer due to complications of an old feeding tube. I am so sorry I disappeared but I am back~ If anyone wants to talk just message or @ me ❤

I haven't shared my diagnoses which are Chiari Malformation, Rumination Syndrome, GERD , GI Dysmotility, Neropathy , generalized pain disorder, Degenerative disc , chronic fatigue , PTSD, severe Anxiety and Depression. Too many things lol

I love the fall too! Super excited to be able to wear hoodie again. XD I am glad that things are going well! Sorry for the late respond. hugs

On the physical front, I have some kind of GI problem that has yet to be identified/treated, as well as chronic severe anemia (despite taking iron supplements for the last 9 years).

The GI problem began after I came down with a horrible mystery infection following antibiotics for H. pylori at the beginning of 2016- one day I was happy and healthy, and then the next morning I was suddenly the sickest I’ve ever been in my life. I still haven’t fully recovered. :’| I’ve spent the last two years trying to figure out what the heck is wrong with me and how to fix it, though— it’s taken a huge toll on my mind and body, I’ve lost a lot of weight and have a very limited diet, and I would very much like to get my life back. ;__; Doctors unfortunately seem content to just go “idk, be less stressed lol” and send me out the door.

The anemia is from my really insanely heavy periods. I can’t take hormonal contraceptives due to other health problems, but my GYN says I’m “too young” for any surgical fixes, apparently (I’m 24). :’V Thanks to anemia, I am often very tired and achy, I get dizzy easily, my heart flutters and skips all over the place, and it takes a long time for me to heal.

On the mental health front, I have ADHD, OCD, PTSD (packaged free with a debilitating phobia!), and possibly some form of bipolar. I tried taking sertraline once and got sertraline poisoning, which was really horrible and I wouldn’t wish it on anyone. So I am back to being unmedicated. :’D

It makes me sad to see other people suffering too, but at the same time, it’s kind of nice to know that we’re not alone. ;v;

I'm part of the spoonie clan. Got diagnosed with fibromyalgia last year, same with osteoarthritis. Which was a shock, given I'm only 27.

Not to mention the mental side of things, autism, adhd, depression, anxiety (multiple kinds), and recently started getting agoraphobia.

A nice big cluster of stuff, but I manage with my little communities, and with my family and partner. Just taking it one day at a time.

celiac disease, osteoarthritis, fibro, adhd, aspergers, asthma, probably bpd :) Joined your cult!

I got the osteo somehow when I was 15. Probably the undiagnosed celiac disease--it fucks with your bones and teeth. If you haven't tried eliminating gluten, it might make your life easier. It does even for some folks who aren't celiac.

Yeah, I've tried cutting out gluten and a wide variety of those other diets that are suppose to help with various things xP Nothing seems to help except for some medications, and even then, it just takes the edge off. I'm getting better with managing everything myself though, just the difficult part is trying to get on some kind of welfare given I can't work, and everything is pretty much a hidden disease. That's where a lot of my issues stem from :c

hugs I hope you can get your disability situation sorted asap.

Hiya ^^ I'm 27, I've been on Subeta for almost 13 years, and I've been dealing with spoonie issues the whole time, although for the last 6/7 years my main issue has been chronic pain. Originally I was misdiagnosed with lyme disease, but I've recently received the support of a rheumatologist who believes I have Fibromiyalgia alongside my gut issues, anxiety, and depression. The pain and fatigue are my biggest issues though. Today it's my hip flexors acting up. I can't sit, stand, lean over, do anything without my whole left side seizing up. It's SUPER FUN and all I can do to stay comfortable on the couch with my computer 8)

I feel like I used to talk to a lot of other spoonies on here back in the day (and specifically in the CC too) but it was yeeeears ago, before they revamped the forums, and I'm not sure how many of those folks are still around. But I feel like there's totally enough of us around here to make a group for if there isn't one already :^p

no clue exactly what i have, but i've been exhausted and in pain pretty much every day for about twelve years. some days it's worse than others, and if i do too much physical activity it comes back to bite me in the ass later on. i guess i count ahaha... oof. i really need to see a doctor about it but i'm nervous because i asked my family doctor about it and he was.... incredibly dismissive and pretty much told me i was making it up, ha. which is exactly what i was afraid of. i know i should try and find a specialist but ughhh money and stress and. ugh

I'm never quite sure if it counts, but I've been told by some people that they consider type 2 diabetes to be a chronic illness? I've also been told by people that it's not a big deal at all, even though for me being told I had it really messed me up.

It's not chronic pain, and for the most part I can forget about it, but it's going to be with me forever, even if I can get it under control. I will always have to watch what I eat. Having recovered from an eating disorder, it's scary and pretty triggering, and I will always have to deal with it.

I also have adhd and depression, but no one seems to care and idk if it's considered chronic either ahaha.

I've got MS (Multiple Sclerosis), tho it's pretty well managed at the moment. I have RRMS (relapse remit MS) so it comes and goes.

I did have a relapse back in December. I was down and out for about 2 weeks which is the worst and longest time i've ever been in a relapse.

Physically I have the official diagnosis of severe achilles tendinitis due to flat feet and PCOS. The first basically means my feet are flat and that's putting stress on the achilles tendon so walking or standing for long periods of time leaves me in extreme pain in my feet, legs, hips and lower back. Too much physical stress and I can even be bedridden for days, having to crawl when I do have to get up because my feet will not support my weight without me being in vomit and shock inducing pain. The second stands for poly cystic ovarian syndrome, aka my ovaries have non-cancerous cysts growing on them that are screwing with hormone production leaving me with issues losing weight (which is in turn exacerbating my tendinitis) and causes me to break out in cystic acne along my lower body as well as near constant cramps, sometimes bad enough to leave me bedridden anyway. I may also have endometriosis, sleep apnea and a few other conditions that all just kind of add to the heap but they are not officially diagnosed and are just thoughts based on symptoms.

Mentally the official diagnosis is severe unipolar depression, severe social anxiety disorder and severe general anxiety disorder with thoughts I may or may not be ADHD, OCD and/or autistic as well as potentially suffering from PTSD due to being verbally, mentally and emotionally abused growing up. All of these are considered to be chronic mental illnesses, and chances are I will never be fully free of them even if I could afford a therapist and proper medications.

It's all pretty nasty and most days leaves me with a very small amount of spoons, especially if social situations get awkward since I have no choice but to deal with people in order to make a living :/

Best of luck to everyone dealing with your conditions.

I'm narcoleptic, have been since I was a young child (or at least I had symptoms), but I was diagnosed in high school. Not cataplectic, but lots of excessive daytime sleepiness. Today is the first day of energy I've had in a while, though I couldn't stay awake at all yesterday...

I have Lymphedema. It's where your body's lymphatic system is compromised and doesn't work like it is supposed to so your body swells. Thankfully I only have it in one leg but it hinders my mobility and balance. I also have PTSD and Bipolar Disorder.

Allo there. I'm a spoonie. I suffer from many chronic illnesses and the pain caused by them. I have several awareness pets dedicated to my conditions. I try to write my pets info as accurate as possible through research and provide helpful resource links to outgoing sites. My sMail is always open if someone ever wants to talk in a private manner about their conditions.

Hi, i'm Nicki, 34, she/her pronouns. I'm on disability for chronic migraine and have hypermobility syndrome (a cousin of Ehlers-Danlos syndrome), diabetes, bipolar disorder, anxiety resultant from PTSD, and stuff I'm too tired to remember right now due to a migraine.

It's nice to meet everyone here. :) I'm new to Subeta as of yesterday, but it really pings my virtual pet site appreciation nostalgia hard. I'm glad to be here and hope to make new friends!