Wigs can be fun. You can change your look so fast. :D
wigs can also be very nice: D my sister used to have beautiful red hair of her own, after she lost her hair I bought a wig of real hair from my savings and that cost me a lot of money ^^, which she wears for weddings and special occasions and in addition we have crazy and fun wigs ^^ we always keep smiling but I found it scary now because she had fallen so badly, but we are making the doctors and nurses crazy again and I am there from about 4 in the afternoon until 9 in the evening now that I have no job .
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
I just wore a long reply and my phone refreshed. X.x
My sister was diagnosed around 21/22, they did an MRI/catscan and saw it there. She has always been sick and no one gave her answers tbh even I thought at times it was just complaining but when we found out it was more serious it made sense. A lot of sense. I felt bad for thinking that. She is still able to walk but has been slowly losing her balance, she uses a cain and the foot doctor just gave her special braces so she doesn't lose her balance and fall. It's been tough on her. I also agree that it is a terrible disease. I wish there was a cure. She has been on several treatments but even then she's still losing other abilities and functions.
Oh dear, so she probably walked for years without knowing what she had. There are days when things are going well, but there are also days when things are going badly. your sister was also young :( And don't feel guilty, I've had it too. my sister actually fell more often or suddenly had no feeling in her feet and then I always thought she had something again. it is very possible that your sister will also get the wrong medication, my sister is now sometimes in a wheelchair, for you and your family a lot of strength :) someday there will be a cure
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
Yeah they told her she had it for a while but nobody knew and it was her first mri too. They keep testing me for it but I know it isn't hereditary form what she's told me. But my doctor insists it is so idk lol.
But yes she's been on several different medications and was once in remission but she said it's been flaring up this year and I know how much summer can harm people with MS too.
I'm sorry about her fall and I'm glad you're there to support her in anyway you can! I wish the beat to both of you as well :). Let's hope for a cure for sure <3
True, it may be in the family but it is not necessary. I have had my bone marrow tested, if it is ever necessary then the doctors can take bone marrow from me and give it to my sister. I always mind how bad they can go. I am glad that she had her alarm bracelet on when she falls and she can not stand up anymore I receive a call ^^. Your sister is also very lucky with your sweetheart. maybe her doctor recognized the medicine? it is very aggressive as chemo. And yes, summer is terrible as if everything is activated in the body
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
Definitely, she is actually the first in the family to have MS. Oh wow I didn't know they could do that, how does that work? I actually could do better as a sister. Since I have a family now we don't see each other as often like we used too. When she was diagnosed my entire family told me it was my responsibility to take care of her and I didn't know what to do.. we had a very estranged relationship. She definitely has aggressive treatment and she's often there for 3 hours. Yeah summer is terrible especially when the sun is just beating on us x.x.
it's not your job to take care of your sister. I find it annoying for you that your family reacted to you as you have a family of your own. I have always been caring about my sister and the choice was made easy for me too because my mother was depressed. If my sister had no feeling in her bladder and so had peeed I cleaned it up and that is my choice. you can not help that your sister is sick and my sister is also the first of the family ... what a similarity ^^
with the bone marrow examination, a large hollow needle was inserted into my back to take it dripping into a tube, I am a match so if my sister is doing very badly, stem cells can be taken from my bone marrow or actually spinal cord . so that there is hope that her body will accept it and that she can continue fighting.
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
I know.. she said it as well though because no one else wanted the responsibility and at the time I was in a bad place emotionally myself. I understand depression for sure my family has it as well as me. My sister also has the bladder issues they are giving her botox for it. It seems to help her for a few months.
Oh wow that's so interesting I will tell my sister about the bone marrow thing!
they only do it when it's really necessary. but it is certainly good to talk to her about it. For example, my sister asked me that if she could no longer talk or eat herself, I would ensure that she was peacefully put to sleep.
but we don't want that task either, and I understand that you really want to do it and your situation is different than mine ^^ you have a family I don't. maybe ask your sister if there are stronger medicines my sister uses Lemtrada® (alemtuzumab)
by the way can i add you as a friend ^^
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
We just spoke about it and said she knew and asked the doctor before, she told me they would have to get rid of her bone marrow first and it's a very serious thing and many can die from it so it scared me when she said that.
I hope it doesn't come to that for her. I don't know the name of the one she is getting right now they've been changing it a lot and she actually doesn't talk to me about her treatments and I think it's because it makes her sad. She always wanted kids and to get married.. once I dis her depression became worse. She actually burned her tubes last year so she wouldn't have kids because of her MS and it made me so sad.. I want her to be happy and having a child brings you joy but I also understand how hard it can and could be.
Yes you may :)
how bad to hear :( the doctor has told my sister that she can have children, but then she cannot take medication for a year. and otherwise my sister will adopt ^^ because she always wanted to be a mother and maybe that is also something for your sister. I understand it all hurts and she doesn't like to talk about it, only talking helps, and asking your sister for a day out can also do her good ^^. I hope, just like you, that my sister doesn't need it.
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
Adopting is great, I would also love to adopt someday haha. Maybe when my kids are older, I'm currently expecting another one so I'll have two kids by next year. She has 7 cats and calls them her kids, which I understand haha. Oets are also kids in a sense!
If it's something your sister wants I hope she can have that dream! I will talk to her more about it and we do get together at times! We watch movies or anime :).
hihihi 7 cats that is a lot and yes they are just kids: D
Congratulations on the arrival of the 2nd. I hope your pregnancy goes well?
Indeed nice talk with your sister about it, maybe she wants to go out with you ^^ I put my sister in the wheelchair and then we go to the mall or to an amusement park ^^ and if she doesn't want that, keep watching nice movies with her ^^
I'm going to sleep ^^ If you want to mail it is always possible! was just fun, subject was a bit trickier but it was nice to talk to you about it ^^ thank you
and always keep smiling and enjoying each other
[Kiss=Lisrax][Dance=Lisrax][flower=Lisrax] [tot=Lisrax]
Yeah.. it's a lot haha.. but nobody can make her have less.
That sounds fun, she does have a wheelchair that she sometimes uses for conventions so it's not a bad idea if she wants to go to the zoo but can't walk a lot. I will recommend we do that together :) thank you.
Thank you for chatting, have a good night! You as well and say hello to your sister and that I hope she feels better soon, and wishing a cure for her :)
Oh, congratulations on your second! It makes me so happy when people decide to have children, mostly two. A lot of the people around me keep postponing it. Some of my friends don't have any :( To me it feels like something big is missing of life.
Love your avatar. Hope your sister feels better soon.
Good morning, How's your Monday going so far? Keep me company today? Having trouble staying positive.
Never bend your head. Always hold it high. Look the world straight in the eye. -Helen Keller
I love friends!!!
We are fully lead by our emotions. If you let things bring you down they will seem worse then they are. When you think things are too hard - stop, take a deep breath, count to 10, and smile. Remember that one or two things you are happy about in your life. It will all be well :)
I am watching something very heavy on Netflix, but I am curious of how it will end.
We <3 you!